Wednesday, June 8, 2011

June 2011 Updates

Olivia has had a wild spring so far. She actually had a moderate winter with only a few infections. In February she was not doing well again with tons of drop seizures. She was admitted to the hospital in March for seizures that we couldn't stop. The IV meds along with her sleep apnea sent her into pulmonary edema with some blood in her lungs. She had to go on the ventilator on her birthday of all days! It was the worst day!! She was able to come home a few days later and has been doing pretty good. She is slowly losing her muscle control and we are unable to keep her safe unless she is in her wheelchair. It's very sad for us because it really breaks her spirit a bit. We appreciate all of the prayers and ask that everyone continues to think of Olivia.

Sunday, March 20, 2011

Saturday, January 29, 2011

January 2011 and 2010 Summary

Hello friends and family. Sorry I have neglected Olivia's blog for so long. The good news is that she has been doing really well so far this winter and so there is not a lot of news. Olivia was able to return to school at the end of September. She is attending a new school in Holland and it is a great fit for her. She really loves going to school.

 We were able to take her off of the full Hospice program and return her to the Hospice Pediatric Early Care Program. Hospice of Michigan is a wonderful organization and I'm not just saying that because I worked there for years. ;-) Seriously, our nurse Jill lives near us and would help us with anything day or night. Our social worker Sheila has been a huge cheerleader for us. Sheila did a beautiful hand cast of Olivia's hand for us and arranged for us to go to the circus and sit in a private booth upstairs. We also attended the Hospice birthday party and got to meet Duff Goldman from Ace of Cakes.

Olivia's health has been up and down but mostly stable. Her hair has begun growing back after her last metabolic stroke. Please keep her in your prayers that she will continue to be healthy. Olivia was also baptized along with all the children in September 2010. It was such a nice day for us. Thanks everyone for your support.