Thank you to everyone for your prayers and well wishes for Olivia. Yesterday she began vomiting several times in a short period, she had right sided weakness and drooling. We had a feeling she might be having a metabolic stroke again. She could move all of her extremities but could not talk when I arrived at the ER with her.
By the time we were moved up to her room, she was doing pretty well. She had to have an IV dose of phenobarbital which made her breathing really rough during the night. A few times the whole team had to come in and we nearly had to put her on the ventilator to help her breathe. Luckily God was watching her and we made it through the night until some of the meds could wear off.
Today she has been stable and they are doing a continuous EEG to see what kind of seizure activity is going on. Hopefully she will be released tomorrow. Keep her in your thoughts and prayers please because it really helps. Thanks. Kelly
PS here is more info on a metabolic stroke.
Showing posts with label Hospital Stays. Show all posts
Showing posts with label Hospital Stays. Show all posts
Monday, August 16, 2010
Friday, March 13, 2009
Home again.
Olivia was able to return home this afternoon. She has had a good night. The twitching has stopped but she still can't walk very well. Rick and the nurse helped her take a bath this morning so she came home with a few pony tails in her hair which she loved. She also got a Dora memory game, a teddy bear and some spinning tops which she had to show mom right away. We are optimistic that she can return to school next week.
She was so pleased that her teachers came to visit her that she was in awe all afternoon and grinning from ear to ear! She loves her teachers and LOVES school! Thanks for visiting her!
She was so pleased that her teachers came to visit her that she was in awe all afternoon and grinning from ear to ear! She loves her teachers and LOVES school! Thanks for visiting her!
Thursday, March 12, 2009
Starting to improve today.
The only new thing to report is that she had a fairly good and uneventful day! They gave her IV meds early this morning for the seizure activity and it stopped them but made her very tired. She has slept most of the day and will probably be able to go home tomorrow morning. Thank you everyone for your prayers and kind words for Olivia. We really feel that it helps her to heal!
Rick spoke with one of the neurologists today and we found out two good points. #1 is that they do have a couple of patients with this diagnosis. One is 14 and the other 20, so it is possible to do well and much of it depends on the patient and their own symptoms. #2 is the fact that she does not have any liver problems is a big plus. Many of the kids who do not do well start out with poor liver function.
We are taking every day only one day at a time and praise God for each one that we are given!
Rick spoke with one of the neurologists today and we found out two good points. #1 is that they do have a couple of patients with this diagnosis. One is 14 and the other 20, so it is possible to do well and much of it depends on the patient and their own symptoms. #2 is the fact that she does not have any liver problems is a big plus. Many of the kids who do not do well start out with poor liver function.
We are taking every day only one day at a time and praise God for each one that we are given!
Monday, February 9, 2009
End of the Week Summary.
Olivia came home from the hospital Tuesday evening. Wed. and Thurs. she did really well and by Thurs. evening she was very restless and anxious to return to school. We decided to send her to school Friday because she was doing so well and very bored at home. Olivia really loves school. She only made it through half the day because she was just too tired.
We got her home at noon on Friday and she went down for a nap. When she woke up we noticed she was started to have head drop seizures again. She continued to have head drop seizures off and on all day Saturday.
Sunday she woke up and I noticed right away that she was not doing well. She was twitching in her upper shoulder, head & neck and left arm. I got her settled on the living room floor watching cartoons with a snack so she could take her meds. They helped her to have a good morning without twitching but it started again after her nap and very strongly this evening. We spoke with the on call neurologist who basically said if the extra meds don't hold her we will end up back in the hospital with more IV phenobarb.
Please keep Olivia in your prayers still because it will be a while before she is truly stable and we think another hospital stay will be inevitable.
We got her home at noon on Friday and she went down for a nap. When she woke up we noticed she was started to have head drop seizures again. She continued to have head drop seizures off and on all day Saturday.
Sunday she woke up and I noticed right away that she was not doing well. She was twitching in her upper shoulder, head & neck and left arm. I got her settled on the living room floor watching cartoons with a snack so she could take her meds. They helped her to have a good morning without twitching but it started again after her nap and very strongly this evening. We spoke with the on call neurologist who basically said if the extra meds don't hold her we will end up back in the hospital with more IV phenobarb.
Please keep Olivia in your prayers still because it will be a while before she is truly stable and we think another hospital stay will be inevitable.
Tuesday, February 3, 2009
She's Home!
Olivia is finally home tonight. We were able to stabilize her with some med changes that will hopefully hold her. We are going to do her MRI outpatient next week. Her seizure activity is minimal at this point and we are very grateful. We are glad that our neurology office works with us to listen to our concerns about doing an MRI right now and the circumstances around my due date. We love our new neurologist Dr. Madelin Chadahumbe! She really has a heart for Olivia.
Please continue to pray for Olivia as we are starting yet another new seizure med tomorrow. Including her supplements, she takes 12 meds daily - most of them twice a day and this will make it 13.
Please continue to pray for Olivia as we are starting yet another new seizure med tomorrow. Including her supplements, she takes 12 meds daily - most of them twice a day and this will make it 13.
Hospital Update...
There is no real news yet which is good. She is stable and in regular room. They never even started her EEG yet. Not until 1pm today. The EEG staff stay just so late in the hospital to do them unless they are called in STAT and apparently because she wasn't having full tonic/clonic seizures she wasn't really an emergency. She also got bumped off the rotation today for an MRI so that will not be until tomorrow.
Do I sound a little crabby and impatient? Yes- I am because they are sitting up there doing nothing but "monitoring" her and giving her phenobarbital while I'm taking meds to try and keep the baby from coming. They also don't even recognize her drop attacks unless Rick points them out to them. Apparently it's normal for a child to be sitting in the bed watching tv or coloring and then suddenly slump over?? Unless they increase one of her meds to see if that will hold her then it's sort of like giving the med while she is there and sending her home blind (without knowing if her regular meds will hold her which will end in us having to turn around and do it all over again). I even wonder why we are going to put her through another MRI with sedation if it's only going to show the " leftovers" of a stroke and not tell them much more than last time.
Please continue to pray for Olivia that we can get some answers for her and get her stable enough to come home without having to turn right around and be admitted again.
Do I sound a little crabby and impatient? Yes- I am because they are sitting up there doing nothing but "monitoring" her and giving her phenobarbital while I'm taking meds to try and keep the baby from coming. They also don't even recognize her drop attacks unless Rick points them out to them. Apparently it's normal for a child to be sitting in the bed watching tv or coloring and then suddenly slump over?? Unless they increase one of her meds to see if that will hold her then it's sort of like giving the med while she is there and sending her home blind (without knowing if her regular meds will hold her which will end in us having to turn around and do it all over again). I even wonder why we are going to put her through another MRI with sedation if it's only going to show the " leftovers" of a stroke and not tell them much more than last time.
Please continue to pray for Olivia that we can get some answers for her and get her stable enough to come home without having to turn right around and be admitted again.
Monday, February 2, 2009
Prayers needed for Olivia!
We are back in the hospital with Olivia. She went to see the neurologist today and they sent her right over to the hospital for a direct admit. We are not sure what is going on yet, but she is starting to show signs of having another stroke. She continues to complain of "Not being able to see" off and on for more than a week now. She is unable to tell us what she means by that; if it's blurry vision or if she cannot see at all.
We will keep you updated as we can. They are starting her EEG right now and they are going to be giving her phenobarbital as well to stop the seizures. We just pray that she does not have to go on the ventilator.
We will keep you updated as we can. They are starting her EEG right now and they are going to be giving her phenobarbital as well to stop the seizures. We just pray that she does not have to go on the ventilator.
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