MEOW!

Olivia was a black cat this year. She had fuzzy ears, a cat shirt and a tail. At first she was upset because she did not have a real costume to put on, until I painted whiskers on her face. Next year I will try and work harder to find something that she can wear that still allows us to strap her in her chair. We put her "tail" in her chair and she really liked that. We went to the mall to walk around and trick or treat. Olivia kept yelling out "MEOW" to everyone. It was pretty funny.

Random Wish Trip pictures

Olivia watching the "fairy" take her star away to put on the ceiling.

The girls on our last night in their Ariel dresses.

Kenton playing with his "friend" in the mirror.

Disney

Hugging Pooh

Tired at the end of the day!

Isaac and Kenton

Mama and her girls at the "Twinkle La Ti Da Spa"

Isaac getting his"tattoo"

Olivia getting her "makeup" on.

Justin and Logan getting their "tattoos"

Meeting Goofy. Notice how long Olivia's hair is getting?

Logan with glasses he won.

Some kids were tired on the trip home in the RV.

Olivia's new brother.

Olivia has a new brother Kenton. She is so happy to hold him every day. Olivia's health remains fair at best. Some days she does really well and other days fairly poor. We are still hoping that she will adjust to all of the recent medication increases. She continues to complain of pain in her legs and headaches. We have a neurology appointment this week. She has also started to have trouble walking. She appears to walk very robotic and almost with stiff legs. Please continue to pray and think about Olivia daily!

More older pictures of Olivia.

We like to show everyone older pictures of Olivia so that those of you who don't know her story can understand that she was a very normal baby. Her seizures starting just before turning two and we were able to keep them fairly controlled for the next two years with medications except she had a lot of twitching at times due to also having myoclonus along with seizures. Now that she is older, between all of the heavy duty meds, the seizures and her stroke, she has had some permanent brain damage and it just seems so cruel that her life is being robbed from her!

Olivia update

Sorry it has been so long between updates on Olivia. Our computer was down for nearly two months. Here are some random pictures and updates on what's happening with her from December 2008 and January 2009.

Updates:
1. We have had some really specialized blood work done which could take up to 3 months to find out the results from. It is to help narrow done what the future could bring and to verify the type of seizure disorder that she has which we believe is Progressive Myoclonic Epilepsy.

2. We are waiting for her walker to be delivered soon so she can use it at home to keep her balance. We will be calling it "Hot Wheels" just like they do at her school.

3. Jan, Feb and March seem to be her worst months health wise and this year so far is no exception. She managed to go through Nov & Dec with only an ear infection and strep throat which is very good for her, but now she is not doing well at all. We have increased her regular seizure meds and we are covering her with an extra (Valium type) med to help her get through but it's not really working.

4. Our adoption of Olivia is final. She is now "officially" our daughter forever as of December 17, 2008. She is now Olivia Ann Eding!

She is having head drop and regular drop attack seizures several times an hour, all day long. She is complaining of not being able to "See" at times which is new and she also had and episode last weekend of seizure activity in her left arm, left side of her face and neck which left her arm paralyzed for almost 10 minutes afterward.

Please remember Olivia during this rough time and pray for her recovery. We are hoping to avoid a long hospital stay this year.

Olivia on Santa's lap.

Adoption day December 17, 2008. She is waiting her turn to use the gavel.

Olivia's turn to bang the gavel and say "It's official"!!

Savanna and Olivia with their princess hats for Christmas.

Snow fun outside in January.

Christmas 2008

Some funny pictures and baby pictures of Olivia

Her 1st Easter with her pink coat on.

Her 1st Easter.

Her first birthday party and her own chocolate cake.


After digging in to her chocolate cake.

Here she is at her second birthday party.

Here she is at age 2. This is what her hair would look like if we didn't put gel in it and her pony tails. We used to call her Fluffer.

Introduction to Olivia

Riding her bike with her pink "soft helmet"

Olivia at Savanna's birth.

Sleeping in.

Christmas 2005

Rocking at grandma's house.

Fifth birthday party.

Birthday balloon- Dora theme of course!