We have more upsetting news. Our neurologist informed us that they have come up with a new diagnosis for Olivia. It's called "progressive myoclonic epilepsy" or PME. Her mitochondrial problems fall under it. It's very disturbing news as it causes patients to decline mentally and physically. It can move really fast or at a slower pace depending on the patient, but there is no way to tell.
Here is a link with more information.
1 comment:
I'm sorry sorry to hear you have to go through this trial. Praying for Olivia!
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