Olivia's Hope

Wednesday, May 29, 2013

This smile is how everyone who knew Olivia remembers her!

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Welcome to Olivia's Hope

This blog is intended to tell the story of Olivia's struggle with a degenerative disease called Alpers. You can read about her disorder HERE. Olivia lost her battle with her mitochondrial disorder just 5 days after turning 10. Please note that mitochondrial diseases or "Mito" for short is surpassing childhood cancer in numbers and there are over 200 known forms of mito. We still hold out HOPE that other children can be saved. There is no cure and very little treatments out there, we must raise money for research.

Olivia

Olivia's Favorites

http://pl.st/p/20529180171

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Newbie must read for mito disorders....
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Mitochondrial Disorder Sites

http://www.haileyswish.org/
http://www.mda.org/
http://www.ninds.nih.gov/disorders/alpersdisease/alpersdisease.htm
http://www.webring.com/hub?ring=mito
http://www.wish.org/

Web rings and links with multiple resources.

http://myweb.ecomplanet.com/MCMA8011/mycustompage0002.htm
http://site.matthewsfriends.org/index.php?page=links
http://www.emdn-mitonet.co.uk/mito.htm

Ketogenic Diets for kids with epilepsy.

http://site.matthewsfriends.org/
http://www.charliefoundation.org/index1.php

Memorial Sites

http://jennymc3.tripod.com/mitoangel.html
http://myweb.ecomplanet.com/MCMA8011/default.htm
http://myweb.ecomplanet.com/MCMA8011/mycustompage0003.htm
http://www.caringbridge.org/co/elijahkurtz/index.htm
http://www.geocities.com/drews_family/index.html
http://www.themattyfund.org/

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