Wednesday, May 29, 2013

This smile is how everyone who knew Olivia remembers her!

Wednesday, September 19, 2012

Tuesday, March 27, 2012

Olivia has gained her angel wings.

We are heartbroken to post that Olivia passed away on Sunday, March 25, 2012. She fought as hard as she could but just had no strength left. Her obituary is here. Thank you for your prayers!

Thursday, February 16, 2012

2012 Updates

I haven't done a very good job of keeping Olivia's blog updated, mainly because everyone uses Facebook so much to keep in touch. I am going to work hard to revise and and properly update her blog. So many changes for Olivia in the past year. Her body is getting so weak that she can hardly hold a cup in her hand. She is in her wheelchair full time now and she is also getting a brace to help with her spinal curvature. I will write more in the next week. Thanks <3

Wednesday, June 8, 2011

June 2011 Updates

Olivia has had a wild spring so far. She actually had a moderate winter with only a few infections. In February she was not doing well again with tons of drop seizures. She was admitted to the hospital in March for seizures that we couldn't stop. The IV meds along with her sleep apnea sent her into pulmonary edema with some blood in her lungs. She had to go on the ventilator on her birthday of all days! It was the worst day!! She was able to come home a few days later and has been doing pretty good. She is slowly losing her muscle control and we are unable to keep her safe unless she is in her wheelchair. It's very sad for us because it really breaks her spirit a bit. We appreciate all of the prayers and ask that everyone continues to think of Olivia.

Sunday, March 20, 2011

Saturday, January 29, 2011

January 2011 and 2010 Summary

Hello friends and family. Sorry I have neglected Olivia's blog for so long. The good news is that she has been doing really well so far this winter and so there is not a lot of news. Olivia was able to return to school at the end of September. She is attending a new school in Holland and it is a great fit for her. She really loves going to school.

 We were able to take her off of the full Hospice program and return her to the Hospice Pediatric Early Care Program. Hospice of Michigan is a wonderful organization and I'm not just saying that because I worked there for years. ;-) Seriously, our nurse Jill lives near us and would help us with anything day or night. Our social worker Sheila has been a huge cheerleader for us. Sheila did a beautiful hand cast of Olivia's hand for us and arranged for us to go to the circus and sit in a private booth upstairs. We also attended the Hospice birthday party and got to meet Duff Goldman from Ace of Cakes.

Olivia's health has been up and down but mostly stable. Her hair has begun growing back after her last metabolic stroke. Please keep her in your prayers that she will continue to be healthy. Olivia was also baptized along with all the children in September 2010. It was such a nice day for us. Thanks everyone for your support. 

Saturday, August 28, 2010

Hospice Care

It's with heavy hearts that we are letting all of our friends and family know that we will be starting Hospice for Olivia on Monday. This is the program we have chosen. The last few days she has really perked up and we sometimes question if the timing is right but in the end we think it's better to be prepared. Only God knows her true time line. There is no urgency right now but her breathing at night is very erratic. Her neurologist feels that her disease and constant seizure activity has begun to break down her Cerebrum which is the center of function in the brain. At this point we are not enrolling her in school and we are keeping her home with us. If you would like to visit with Olivia and help keep her entertained (she is mostly confined to her wheelchair now) then give us a call. Please keep Olivia in your thoughts and prayers. Thanks. Kelly

Sunday, August 22, 2010

Olivia Update August 22, 2010

Olivia is doing well. She had a rough weekend as we are adjusting her medications. She is still weak and tired. We have had to help her eat, plus she has been in her wheelchair more often now than not. Here is a picture of her sleeping in the hospital while we were waiting to be discharged. She got a new pig from the book/show "Olivia". Notice she did not let go of her balloon while sleeping. Smile.

Monday, August 16, 2010

Hospital update 8/16/10

Thank you to everyone for your prayers and well wishes for Olivia. Yesterday she began vomiting several times in a short period, she had right sided weakness and drooling. We had a feeling she might be having a metabolic stroke again. She could move all of her extremities but could not talk when I arrived at the ER with her.
By the time we were moved up to her room, she was doing pretty well. She had to have an IV dose of phenobarbital which made her breathing really rough during the night. A few times the whole team had to come in and we nearly had to put her on the ventilator to help her breathe. Luckily God was watching her and we made it through the night until some of the meds could wear off.  
Today she has been stable and they are doing a continuous EEG to see what kind of seizure activity is going on. Hopefully she will be released tomorrow. Keep her in your thoughts and prayers please because it really helps. Thanks. Kelly
PS here is more info on a metabolic stroke.