Tuesday, November 4, 2008

October 2008 updates...

Olivia as a cheerleader

Halloween 2008
Savanna and Olivia

1. We took Olivia to the University of Michigan to meet with a doctor in the neurology dept. The trip was fun and she enjoyed staying in the hotel, but we don't have much new to report. We definitely didn't like the way they run the clinic because we spent 1 1/2 hours with a young resident and 10 minutes with the specialist that we went there to see. I don't think you can make a great determination on a child in 10 minutes, esp. when you hear her history second hand from a resident instead of from the family. We will continue to look for new tests and new ideas though. We are going to consult with a new specialist in Houston that specializes in mito disorders and we'll see what she can come up with.

2. Olivia has been approved medically for a wish from the Make A Wish Foundation. We are so happy for her, but it's very bittersweet. We are thinking that she wants to go to Disney.

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