Friday, December 11, 2009

Extra info...

I just wanted to let everyone know that we are not giving up on Olivia. No one has accused us of doing that, it's just that I felt like I should address it so that we can express how we feel. Our neurologist wanted to gently steer us towards having to decide about making her a DNR in the future. We would never let her "live" in a vegetative state with no quality of life. I have the highest regard for life. Unborn life all the way through a dignified death. It probably comes from my years as a hospice nurse. For anyone who did not see the info on her disease I will re-post it here.

There is no cure and so far no real treatments. Seizure meds and Neurontin for her nerve pain is all we can do for now. Eventually her seizure meds won't work. We hold out all HOPE that God will cure her and she can live a full life!

4 comments:

Courtney Kay said...

sending love and prayers

Anonymous said...

Rich & Kelly - You were heavy on my mind Thursday as I knew you had an appt. & you continue to be in my prayers after the news you received. This news from the dr. is not easy to hear & breaks my heart. Know that Olivia & your family are in my prayers. It is my honor to spend my days with your daughter! When you say she is "spunky" is an understatement & brings a smile to my face. I missed her this week & pray we'll get to see her next week to enjoy the festivities before Christmas. My love & prayers for you all! Mrs. Gruppen

Anonymous said...

Kelly you and your family are in my thoughts as you continue to hang strong and love your little girl!
Kristi

Emily Vedra said...

praying for you and your family, Kelly